Social model hospice homes can change end-of-life care

According to an article written by Dr. Karen Wyatt, a hospice and family physician, there are six reasons why the social model home hospice home is a much-needed solution for end-of-life care. Wyatt, an expert on the topic of end-of-life care, has written a book on the subject: “What Really Matters: 7 Lessons for Living from the Stories of the Dying.”

The following are reasons for the social model home are taken verbatim from a longer article from the Huffington Post.

1. Shortage of family caregivers.

According to a study reported by AARP Public Policy Institute, there will be a severe shortage of family caregivers as the Baby Boom generation ages and faces the end-of-life. While there are currently seven potential family caregivers for every patient, this ratio is expected to drop to 3:1 by 2050.

2. Shortage of paid caregivers.

In addition, a study published in the Health Affairs journal in June indicates that “at least 2.5 million more long-term care workers will be needed to look after older Americans by 2030.”

3. Need for family respite. 

The Institute of Medicine’s 2014 report Dying in America points to a current need for respite and support for family caregivers to help avoid burnout and resulting emergency hospitalizations. Social model hospice homes can provide respite care as well as terminal care, allowing for much-needed rest for exhausted caregivers.

4. Need for home renovation for safety and mobility.

The IOM report “Dying in America” also cites a “lack of publicly-funded programs for retrofitting homes for safety features and wheelchair accessibility. Social model hospice homes are already designed to meet safety and mobility standards and can eliminate the need for expensive renovations to family homes.”

5. Cultural barriers to hospice care.

Some of these barriers include a lack of cultural diversity in hospice staff, mistrust of the healthcare system, and worry about insurance coverage and cost of care. The community-based social model hospice home has the potential to overcome some of these barriers by utilizing volunteers and caregivers from the patient’s own cultural group and neighborhood, by functioning largely outside the health care system, and by eliminating financial concerns through unique funding streams.

6. Reduction in Medicare payments for hospice and home care.

Under the social model of care for the dying, there is no federal or state funding because these homes do not function as medical facilities. In many states, they are licensed under the Department of Social Services rather than the Department of Health. Social model hospice homes rely on foundations and grants, community fundraising, and contributions from individual donors for funding.

Lighting the night with love

With donor support, we can light up the night at Stephens Lake Park on Nov. 6 as part of its inaugural fundraising event – Lights for Love: A Memorial Event.

This memorial event gives people an opportunity to purchase a luminary to honor their loved one and help raise funds to open a home in Columbia for those who are under hospice care, in the last month of life, and in need of caregiver support.

Lights for Love November 6

“We wanted to put together a fundraiser for the community that could be meaningful,” said Jackie Reed, treasurer, and co-founder for Caring Hearts and Hands of Columbia. “This is an opportunity to heal as a community after nearly two years of extremely difficult times for many of us.”

Community members can purchase a luminary to display at Stephens Lake Park on Nov. 6 at 5:30 p.m. Each luminary can be purchased for a minimum donation of $10.

The event will include music and will allow loved ones to spend time with others who have lost loved ones and remember their influence in our lives.

Lights for Love Memorial Event
Saturday, Nov. 6, 2021
Gordon Shelter – Stephens Lake Park

Check-in: 5:30 p.m., Gordon Shelterhouse
Luminaries on Display: 5:45 – 6:45 p.m.
Program & Music: 6 p.m.

Understanding the Omega Home Network

Omega Home Network logo

There’s so much to know about the social model home. It’s an innovative way to provide care at the end of life, and right now there isn’t such an option in the mid-Missouri area. However, there are others in Missouri and across the country. For a complete list of Omega Home Network members, click here. 

Q: What is the Omega Network? 

A: According to the Omega Home Network website, the Omega Home Network is a non-profit national membership organization that promotes the development and expansion of community homes for dying people.

Q: What does a social model home, like those in the Omega Home Network, provide? 

A: Social model homes are available across the country. They vary in size but provide end-of-life care in a compassionate and respectful community of caregivers. It models a home environment but provides skilled caregivers while linking guests with hospice care. 

Q: Why is Caring Hearts and Hands of Columbia part of this network? A: What CHHC is doing isn’t different from what is happening in other areas of the country. It’s simply new to us. The CHHC founders, both with extensive experience in palliative care, have seen this model work, and know it can help those in mid-Missouri.

Community Conversation: End-of-life care

Saturday, April 24
9:30 a.m. – Noon
Livestreamed at https://www.facebook.com/Caring-Hearts-and-Hands-of-Columbia-104862761099720

Caring Hearts and Hands of Columbia will facilitate a conversation with experts.

Miranda Lewis Image

Miranda Lewis, the niece of Nancy Cruzan, speaks from family experience about dying with dignity. Lewis’ family was in the midst of a public court case in the late 1980s that led to a right-to-die case that transfixed the nation. The case would end up going to the Supreme Court and result in a 5-4 decision that led Cruzan’s feeding tube to be removed after eight years in a vegetative state.

Dr. Kate Grossman, a pulmonary and critical care physician at Boone Health, will speak about the need to respect the wishes at the end of life. Grossman has been involved in the end-of-life decisions of those who are making critical decisions. Grossman will provide a helpful perspective on the importance of respecting the wishes of those who near the end of their lives.

Saturday, April 24
9:30 a.m. - Noon
Livestreamed at https://www.facebook.com/Caring-Hearts-and-Hands-of-Columbia-104862761099720
Caring Hearts and Hands of Columbia will facilitate a conversation with experts. 
Miranda Lewis, the niece of Nancy Cruzan, speaks from family experience about dying with dignity. Lewis' family was in the midst of a public court case in the late 1980s that led to a right-to-die case that transfixed the nation. The case would end up going to the Supreme Court and result in a 5-4 decision that led Cruzan's feeding tube to be removed after eight years in a vegetative state.
Dr. Kate Grossman, a pulmonary and critical care physician at Boone Health, will speak about the need to respect the wishes at the end of life. Grossman has been involved in the end-of-life decisions of those who are making critical decisions. Grossman will provide a helpful perspective on the importance of respecting the wishes of those who near the end of their lives.